Supporting Individuals & Families Affected by XP
The Joshua Reagan Foundation Trust is dedicated to improving lives through awareness, education, advocacy, and practical support for those living with rare genetic conditions like Xeroderma Pigmentosum (XP).
About Us
Compassionate support for the XP community
The Joshua Reagan Foundation Trust is based in London, UK, and currently operating in Uganda. We are committed to supporting individuals and families affected by rare genetic conditions, with a special focus on Xeroderma Pigmentosum (XP).
Our mission is to improve lives through awareness, education, advocacy, and practical support for those living with rare conditions.
Learn More About UsOur Objectives
How we're making a difference in the XP community
Raise Awareness
Increase public and professional awareness of Xeroderma Pigmentosum (XP) through educational campaigns, workshops, and community outreach programs.
Provide Support
Offer practical support, resources, and guidance for families and patients dealing with the challenges of XP and other rare genetic conditions.
Advocate for Better Care
Advocate for improved healthcare access, policy changes, and greater recognition of rare conditions within medical systems and government institutions.
Support Research
Encourage and support scientific research into treatments, management strategies, and ultimately a cure for XP and related conditions.
Understanding Xeroderma Pigmentosum (XP)
Learn about this rare genetic condition
Xeroderma Pigmentosum (XP) is a rare genetic disorder that affects the body's ability to repair damage caused by ultraviolet (UV) light. Without proper care and protection, individuals with XP can develop serious health issues, including skin cancer at a very young age.
Early diagnosis and comprehensive protection from UV light are essential for managing XP and improving quality of life for those affected.
Learn More About XPJoin Us in Making a Difference
Your support can help us provide essential resources, raise awareness, and improve the lives of those affected by XP and other rare genetic conditions.